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Research Confirms Fibromyalgia is NOT all in your head

Fibromyalgia is one of this conditions that has had a bad rep for long time. People (even Doctors) telling those suffering with the condition that it is all in their heads. My More »

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Waiting for a Diagnoses

I think one of the hardest thing about having an invisible disease is waiting. You feel so many things at the same time but typically have no answers as to why. For More »

Why Me

Why me?

One of my good friends who lives with a chronic illness said to me today “why has life been so hard for us? (referring to herself and her husband), we are good More »

Friendship-Quotes-Best-Friendship-Quotes-Best-Friends-Forever-yes-.

Discrimination Against Eachother

Unfortunately I have discovered that discrimination and ignorance towards those with disabilities (invisible or not) does not just reside in the “Healthy”. It is within our own community as well. I am More »

RIP Robin Williams

In my web searches yesterday and travels through social media, one can’t help but notice the impact the passing of Robin Williams has had on the world.  More »

Research Confirms Fibromyalgia is NOT all in your head

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Fibromyalgia is one of this conditions that has had a bad rep for long time. People (even Doctors) telling those suffering with the condition that it is all in their heads. My own grandmother was led to believe by her doctors, family and friends that all of her symptoms were psychosomatic. If only there was the research to show that the pain she felt may have in fact been caused by Fibromyalgia.

Well, studies have PROVEN  that it is a REAL disease and that Fibromyalgia is NOT all in your head.

Diary Entry: Oct 8, 2014

It’s very rare I have stay in bed days. Even on a bad day I still feel like I should move to the couch to feel like I at least moved.

Waiting for a Diagnoses

0e1407027_waiting-series-graphic

I think one of the hardest thing about having an invisible disease is waiting. You feel so many things at the same time but typically have no answers as to why. For many it takes years for a diagnoses leaving you feel confused and empty. You begin to wonder if you ARE crazy. Maybe what you are feeling is in fact a figment of your imagination.

Why me?

Why Me

One of my good friends who lives with a chronic illness said to me today “why has life been so hard for us? (referring to herself and her husband), we are good people”.

Discrimination Against Eachother

Friendship-Quotes-Best-Friendship-Quotes-Best-Friends-Forever-yes-.

Unfortunately I have discovered that discrimination and ignorance towards those with disabilities (invisible or not) does not just reside in the “Healthy”. It is within our own community as well. I am apart of a number of forums and support groups on-line. Meeting people who understand what you are going through can be very beneficial. We discuss symptoms and families and feelings and so much more.

RIP Robin Williams

In my web searches yesterday and travels through social media, one can’t help but notice the impact the passing of Robin Williams has had on the world. 

Seeing my chronically ill friend have a flare

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I had the unfortunately fortunate experience of seeing one of my closest friends suffer a bad flare over the weekend. I say fortunate because although I could possibly take a good guess at what my friend goes through, I will never truly know, and seeing it, is the closest I will get to understanding it.

Comparing my Symptoms

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My mom was recently asking me about the symptoms of my various conditions. Her and I both have horrible memories so I thought to make it easier on both of us I would create this chart so she can see side by side what I live with every day. Of course there are a million more symptoms to all of these conditions, but these are the common ones.

A Before and After Comparison

I read an article on psychology today which compared the “Before” and “After” snapshots of Chronic Pain and Illness. Its funny, I have thought about this before. In a conversation with a friend with a Chronic Illness we described how the illness changed us.

So here are my before and after snapshots (without including the list described by Tony Bernhard, J.D. in Psycology today which I have posted below.)

The Fibro Flare

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I didn’t understand what a fibro flare was in the beginning. I thought ” I’m always in pain, how do I know when it’s a flare?” What you don’t realise is that every day pain will become normal. Feeling sore or achy will become life so although it is there and you are aware of it, it becomes something you manage to live with.
I say “manage to live with” and not “something you manage”, because when people hear the latter, they thing you are fine and it’s gone. It’s not gone, you have learnt to multi task.